
17th November 2011, 11:44 PM
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UBloonie
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Join Date: Jan 2004
Location: Born Cleethorpes,Lived Nr Grimsby,Adelaide, South Australia since 1979
Posts: 4,168
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Would you be interested?
Since a week before my 16th birthday (when I was diagnosed with Rhuematoid Arthritis) I have been keeping a vague diary and a couple of years later I started writing a book about my experiences.
I was thinking of putting a few excepts up on here,(BT style) open to criticism and for your thoughts about it.
Just wondered if any of you would be interested in reading it (not to buy) but just as critics good or otherwise?
I'd just like to know if anyone would be remotely interested and if I could do things better or different.
This disease is a killer of your enthusiasm for life and bearing in mind some babies are born with it. It's such a cruel disease and it's not terminal, although sometimes I wish it was. It's becoming more prevelant and there is still no cure.
There are various treatments with side effects like thin skin, causing MS, weak bones (go figure), cancer, kidney and liver failure to name a few.
RA often takes a backseat to Cancer in fund raisers because of it not being a terminal disease, so few people give money to help find the cure.
There are very few books out there on people's journeys with RA, thought it may be good to maybe raise a bit more awareness.
Although some of my book is written the last 10 years isn't due to my arthritis (ironic) If you guys are interested it would egg me on to finish it.
So........what do you think peeps?
Interested?
__________________
Intoxicated by UB40!

A labour of Love-by Stubby 2008
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18th November 2011, 12:02 AM
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Super Über UBloonie
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Join Date: Feb 2003
Location: southampton
Posts: 21,809
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It would be interesting to read Paula 
I have family and friends with RA, it is a cruel disease. Guess I'm lucky I've only got OA painful but not crippling as RA.
TC.
love jx
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18th November 2011, 12:04 AM
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Super Über UBloonie
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Join Date: Jan 2010
Location: Penyrenglyn,Rhondda Cynon Taf
Posts: 10,439
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Quote:
Originally Posted by j59
It would be interesting to read Paula 
I have family and friends with RA, it is a cruel disease. Guess I'm lucky I've only got OA painful but not crippling as RA.
TC.
love jx
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Hiya Jen,nice to see you posting.
__________________
 REGGAE MUSIC CAN'T REFUSE IT
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18th November 2011, 12:07 AM
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Super Über UBloonie
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Join Date: Jan 2010
Location: Penyrenglyn,Rhondda Cynon Taf
Posts: 10,439
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Quote:
Originally Posted by stubby
Since a week before my 16th birthday (when I was diagnosed with Rhuematoid Arthritis) I have been keeping a vague diary and a couple of years later I started writing a book about my experiences.
I was thinking of putting a few excepts up on here,(BT style) open to criticism and for your thoughts about it.
Just wondered if any of you would be interested in reading it (not to buy) but just as critics good or otherwise?
I'd just like to know if anyone would be remotely interested and if I could do things better or different.
This disease is a killer of your enthusiasm for life and bearing in mind some babies are born with it. It's such a cruel disease and it's not terminal, although sometimes I wish it was. It's becoming more prevelant and there is still no cure.
There are various treatments with side effects like thin skin, causing MS, weak bones (go figure), cancer, kidney and liver failure to name a few.
RA often takes a backseat to Cancer in fund raisers because of it not being a terminal disease, so few people give money to help find the cure.
There are very few books out there on people's journeys with RA, thought it may be good to maybe raise a bit more awareness.
Although some of my book is written the last 10 years isn't due to my arthritis (ironic) If you guys are interested it would egg me on to finish it.
So........what do you think peeps?
Interested?
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Would be a very interesting read,go for it.
__________________
 REGGAE MUSIC CAN'T REFUSE IT
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18th November 2011, 03:25 AM
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UBloonie
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Join Date: Jan 2011
Location: South Dakota, Colorado transplant USA
Posts: 1,512
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I agree, Paula, go for it! Support is a grand receive!
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18th November 2011, 08:39 AM
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Super Über UBloonie
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Join Date: Dec 2005
Location: Loondon
Posts: 22,112
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What they said! Please do serialise it for us Paula  The written word should always be publicised - but I warn you now, I'm a voracious reader
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18th November 2011, 10:24 AM
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Super Über UBloonie
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Join Date: Sep 2005
Location: Gloucestershire/tractorland
Posts: 14,097
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thats a grand idea... go for it
__________________
XXXXXXXXXX KIMXXXXXXXXXX
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18th November 2011, 10:29 AM
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UBloonie
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Join Date: May 2008
Location: Birmingham
Posts: 999
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Stubby, would love to read of your experiences. I know someone who suffers with RA and it is bad.
Good luck to you.
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18th November 2011, 10:39 AM
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UBloonie
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Join Date: May 2006
Posts: 1,269
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I suffer from Osteo arthritus in my right ankle and knees. So I have alittle understanding of what you experience, although its no where near as bad as R.A I knwo exactly what you mean when you say it destroys your zest for life, Ive had it for 7 years, I developed it after an injury and it can get you down, I struggle to get up stairs sometimes and its not nice at all feeling like an old man at such an early age. Still I learn to live with it, I try and not let it get me down, hey Im getting too hungover to kick a football around on a Sunday anyway.
Id love to read some extracts from the book, it could be theraputic.
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18th November 2011, 11:25 AM
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Extra Super Über UBLoonie
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Join Date: Oct 2003
Location: North Wales/Welsh and proud of it!
Posts: 28,006
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Hiya Paula,  I know you have had some very rough times, as I am sure many with the same condition can testify, I think making people aware is a brilliant idea
__________________
Big Luv
Mags
~THE GEMINI DEFECTIVES - DON'T COME TO US FOR ADVICE!!!!~
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